Hilsen. Peter. Peter Born M.D, ph.d. Pediatric Neurology 5003 Rigshospitalet Blegdamsvej Copenhagen Ø Denmark Fax

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1 Sundheds- og Forebyggelsesudvalget SUU Alm.del Bilag 39 Offentligt Fra: Alfred Peter Born Dato: onsdag den 25. september Til: Mette Kenfelt Cc: Louise Schouborg Brinth Claus Werner- Jensen Jørgen Kenfelt Emne: SV: Eksperthjælp i udlandet - FW: About my daughter, Simone Kenfelt s serious and debilitating sideeffects after the HPV vaccination Gardasil Hej, Du må gerne send det til mig så kan jeg sende videre til Anja, som tager sig af udredning af vaccinationsbivirkninger. Vi kan jo desværre ikke fremskynde hendes udredning for sygdomme i de små nervefibre meget mere, det er en ret omfattende undersøgelse. Jeg ringer til jer senere på ugen og hører hvordan det går Hilsen Peter Peter Born M.D, ph.d. Pediatric Neurology 5003 Rigshospitalet Blegdamsvej Copenhagen Ø Denmark Fax Fra: Mette Kenfelt [Mette@Kenfelt.dk] Sendt: 25. september :32 Til: Alfred Peter Born Cc: Louise Schouborg Brinth; Claus Werner-Jensen; Jørgen Kenfelt Emne: Eksperthjælp i udlandet - FW: About my daughter, Simone Kenfelt s serious and debilitating sideeffects after the HPV vaccination Gardasil 1

2 Kære Peter Born, Som du selv har set, forværres Simones tilstand sig hastigt og alvorligt. Udover besvimelserne med efterfølgende lammelser har Simone også meget markante og brændende smerter i hele kroppen og hovedet, kombineret med de øvrige symptomer. Det er umenneskeligt, men jeg synes Simone trods alt tackler det flot. I henhold til aftale med Louise Brinth startede Simone i går med at tage Gutron, 5 mg, dog kun en 1/4 om dagen til at starte med. Vi håber vi kan undgå hendes besvimelser. Louise og jeg taler sammen igen på fredag. Vi har som aftalt med dig mandag den taget kontakt til flere eksperter i udlandet, som arbejder med bivirkninger efter HPV vaccinen. Nedenstående finder du den første mail, som jeg har sendt i den forbindelse. Jeg har allerede fået en del viden, som jeg meget gerne vil videregive til den/de rette læger og eksperter på Rigshopsitalet. Hvem skal jeg sende til? Jeg ser frem til at høre fra dig, snarest muligt. På forhånd tak og fortsat god dag Hej fra Mette Kenfelt Mobil Fra: Mette Kenfelt <Mette@Kenfelt.dk> Dato: fredag den 20. september Til: "Prof. Shoenfeld Yehuda" <Yehuda.Shoenfeld@sheba.health.gov.il>, Eleonora Luka <lukaeleonora7@gmail.com>, "O. Beckord" <o.beckord@invitalab.de>, "O. Spielmann" <o.spielmann@invitalab.de>, Vera Stejskal <vera@melisa.org>, <lucijat77@gmail.com>, 'Claus Muss' <profmuss@gmail.com>, <zdenkabadal@aol.com> Cc: Fam Viborg <famviborg@viborgs.dk>, Claus Werner-Jensen <doc.cwj@gmail.com>, Louise Schouborg Brinth <Louise.Schouborg.Brinth@regionh.dk>, Karen-Marie Dahlmoes <Karen- Marie.Dahlmoes@abacusmedicine.com>, Per Andersen <perandersen@dadlnet.dk>, Jørgen Kenfelt <j@kenfelt.dk>, Mette Kenfelt <Mette@Kenfelt.dk> 2

3 Emne: About my daughter, Simone Kenfelt s serious and debilitating sideeffects after the HPV vaccination Gardasil Dear all, My daughter Simone's condition is very serious and debilitating after HPV vaccine Gardasil. Simone passed out 2 times a week with subsequent paralysis in the legs and arms. Both before and after her fainting sheep Simone sharp and burning pain throughout the body and the head. She is without diagnosis and treatment. There is no pain medication that can help my daughter. Denmark's leading hospital Rigshospitalet has informed us that they have no idea how Simone to be treated. Rigshopitalet are interested in being contacted by experts from abroad. I have yesterday sent an (read the bottom) with content similar to the following 4 different doctors around the world. I have attached 7 files. If you have suggestions or comments submitted hear, I want from you. We ( Karsten Viborg and Mette Kenfelt) also work 24/7 to stop the HPV vaccine in Denmark and have set up an expert committee of scientists and physicians from home and abroad. We hope you will participate with your knowledge in Denmark. Here and now turn my focus on Simone health if condition worsens significantly. I have contacted the following four doctors: Dr. Foley Dear Mette, Thank you for reaching out to us about your daughter, Simone. We can certainly understand your concerns about the severe and debilitating side effects Simone has experienced after getting the Gardasil vaccine. Dr. Foley will review the information that you have forwarded to us and we will get back to you soon. Best Regards, Janet McDonald Practice Manager 3

4 2013 Crompond Road Yorktown Heights, NY Tel: Also to Dr. Christof Plothe Also to Dr. Thomas Raw Also to Dr. Dawning I very much look forward to hearing from you and further dialogue. Best regards Mette Kenfelt Mobile Mette@Kenfelt.dk Fra: Mette Kenfelt <Mette@Kenfelt.dk> Dato: torsdag den 19. september Til: <enq@naltd.co.uk> Cc: <ericaclare@me.com>, Mette Kenfelt <Mette@Kenfelt.dk>, Jørgen Kenfelt <j@kenfelt.dk> Emne: Att. Dr. Downing - About my daughter, Simone Kenfelt s sideeffects after the HPV vaccination Gardasil Dear Dr. Downing. I m writing to you, recommended by Dr. Lucija Tomljenovic. She tells me that you are one of the most experienced doctors in the field of side effects after Gardasil vaccines. 4

5 My daughter Simone has very serious and debilitating side effects following HPV vaccine Gardasil. Simones HPV history: I have attached Simones story that I wrote on Facebook on 4 August Since then, Simone passed out 2 times a week with subsequent paralysis in the legs and arms. Both before and after her fainting sheep Simone sharp and burning pain throughout the body and the head. She is without diagnosis and treatment. There is no pain medication that can help my daughter. After my write on Facebook, I have contact with 115 adverse event affected girls and women. It is a serious problem. We are a small group of parents that the last 3 months have worked hard 24/7 with HPV vaccine. Today we have so much valuable and serious knowledge about Gardasil and its side effects, that we feel a great responsibility to share. We are now in dialogue with the responsible politicians in Denmark. We focus on that will set up an expert group of leading scientists and physicians from home and abroad. It is vital that we find a treatment that can help all of our adverse hit girl and women. Denmark's leading hospital Rigshospitalet in Copenhagen is responsible for Simone. Rigshospitalet has just announced that they have no idea how Simone to be treated. Simone is unfortunately very hard hit. I sincerely hope you can help us and will assess Simone? What are our options and how you can best help us? Initially, I am forwarding the various blood tests - and urine tests there have been conducted and an overview from Simone's doctor Claus Werner Jensen. I very much look forward to hearing from you and further dialogue. Best regards Mette Kenfelt Mobile Mette@Kenfelt.dk 5

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